›

The Cerebral Palsy (CP) Thread

1235»

Comments

  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    Apparently not. Seizure #4 followed today, Wednesday 13 December at 5:30 CST. Yawn. I'm so freaking tired of this crap.
  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    Birdleson wrote: »
    So sorry to hear about all of this. Words seem a relatively small thing, but you know that many of us would give anything we could to help alleviate your discomfort and pain. If you ever want to talk we can exchange numbers through messages either here or on Facebook. I hope that you can still get a chance to watch some Bond and take your mind away for a spell.

    Oh, don't worry. I will. My parents keep telling me that perhaps it's just a matter of switching medications. I have an appointment with someone who specializes in epilepsy on January 8. I will keep you all updated on that day.

    Please take comfort in the following:

    1) Seizures aren't life threatening.
    2) They do not affect life expectancy.
    3) Brain damage isn't possible either.

    So, while it may be scary for you - and it definitely is frightening for me - there is absolutely nothing to be worried about in the long run. A minor headache is there. Sure. That's to be expected, as I have heard that's quite normal. I assure you that after a good night's rest, I will be in top notch shape!

    Again, please don't worry for me! That's the last thing I want.

    Regards,
    Justin Litke
  • BMW_with_missilesBMW_with_missiles All the usual refinements.
    Posts: 3,000
    I hope you start feeling better Justin, and I certainly hope that the specialist can help you. I'll keep you in my prayers.
  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    Birdleson wrote: »
    Alright, forget it then.

    ;) :D
    BMW_with_missiles wrote: »
    I hope you start feeling better Justin, and I certainly hope that the specialist can help you. I'll keep you in my prayers.

    Thank you!
  • JamesBondKenyaJamesBondKenya Danny Boyle laughs to himself
    Posts: 2,730
    Ay listen mate, your predicimant sucks, and I hope you find the balance you are looking for, but you gotta remember, this life is quite possibly all that we got and once your doctor sorts out your meds and the seizures are at a minimum, itll work it self out. Its an obstacle that can and will be passed.
    All th Best.
  • Some_Kind_Of_HeroSome_Kind_Of_Hero
    Posts: 6,844
    My thoughts are with ya, Justin. I can't imagine living through what you are. Take comfort in the good things in life and keep hoping for the best.
  • Major_BoothroydMajor_Boothroyd Republic of Isthmus
    Posts: 2,722
    All the best @PropertyOfALady - I've learnt a lot from this thread and I'm glad you have what sounds like a supportive and caring family. It must be frustrating, scary and challenging to be enduring these seizures. It's a pleasure having you on this forum and I'm glad it's a source of respite and enjoyment for you. 'Kia Kaha' as we say in this part of the world (roughly translated - 'stay strong')
  • ThunderfingerThunderfinger Das Boot Hill
    Posts: 45,489
    35e.png
  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    Alright. Here's what we now know.

    The seizures seem to be coming from the rear of my brain, where vision is housed, which explains why I see things immediately before one.

    What's also back there is my shunt. The working theory is too much scar tissue. Now it's just a matter of finding the right dosage of pills.

    Also, I was told of a patient that recites lines of Harry Potter to keep hers at bay. And another whose seizures were triggered by his father's neckties.
  • ThunderfingerThunderfinger Das Boot Hill
    Posts: 45,489
    The classic necktie seizures.
    pianotie.gif?v=1484801208
    tumblr_mr1ajyGEJV1snge63o1_1280.gif
  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    Wow. You are lucky I don't get them from flashing.
  • ThunderfingerThunderfinger Das Boot Hill
    Posts: 45,489
    I know.
  • 0BradyM0Bondfanatic70BradyM0Bondfanatic7 Quantum Floral Arrangements: "We Have Petals Everywhere"
    Posts: 28,694
    @PropertyOfALady, it'd be great if you could find some words to hold the seizures at bay too, maybe Bond related. Like the last lines of Tennyson's Ulysses, for instance. A nice rhythm to the poem, something to keep you relaxed, etc.
  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    It might work!
  • Some_Kind_Of_HeroSome_Kind_Of_Hero
    Posts: 6,844
    That would be pretty epic actually if you could fight your seizures with a Tennyson poem. It's worth a shot at least!
  • 0BradyM0Bondfanatic70BradyM0Bondfanatic7 Quantum Floral Arrangements: "We Have Petals Everywhere"
    Posts: 28,694
    Some_Kind_Of_Hero wrote: »
    That would be pretty epic actually if you could fight your seizures with a Tennyson poem. It's worth a shot at least!
    The words would also be applicable.

    "strong in will to strive, to seek, to find, and not to yield."
  • DragonpolDragonpol https://thebondologistblog.blogspot.com
    Posts: 18,281
    Very sorry to hear you had an another seizure, Justin. I must have missed this one. Hope the doctors can finally get to the bottom of the cause and sort this mystery out.
  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    I didn't have another, no. My last was 13 December.
  • DragonpolDragonpol https://thebondologistblog.blogspot.com
    Posts: 18,281
    PropertyOfALady wrote: »
    I didn't have another, no. My last was 13 December.

    What I meant was that I don't think I'd heard about that particular one.
  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    Last night 14 May I had another. 5 months and a day, and I was doing so well. Back to this crap again?

    Ugh.
  • DragonpolDragonpol https://thebondologistblog.blogspot.com
    Posts: 18,281
    PropertyOfALady wrote: »
    Last night 14 May I had another. 5 months and a day, and I was doing so well. Back to this crap again?

    Ugh.

    Sad to near it. Hope you're feeling better now.
  • ThunderfingerThunderfinger Das Boot Hill
    Posts: 45,489
    You can endure, Property. We all get our crosses to bear. Good on you that you get through it all, but I do wish you health and improvement.
  • PropertyOfALadyPropertyOfALady Colders Federation CEO
    Posts: 3,675
    Birdleson wrote: »
    Sorry to hear it. But longer gaps have to be a plus, no?

    Oh, definitely. 5 months this time as compared to two all the others. I'm sure this will result in a higher dose of Keppra, but all I want is for them to stop! I don't care what they have to do.
Sign In or Register to comment.